Tired isn’t a good place to be. Then tired and in a bath because your bones ache. Except the bath was warm.
I started feeling a bit weird then realised my heart was thumping. Not just thuds, but making my boob shake thumping (yes- I did watch it with amusement. no – there’s no photos). Thankfully my phone is super cool and has a scanny thing at the back that uses the same medical tech as those clippy things doctors put on your finger. By placing my finger on the back of my phone, it can measure my heart rate and oxygen sats. This is quite useful when you’re feeling potsy.
The definition of POTS (or Postural Tachycardia Syndrome ) is a rise of 30 bpm on (or within 10 minutes of) standing or rising. This is also affected by changes in temperature. I currently have an appointment for testing in December having been picked up for symptoms in the summer and having my EDS specialist confirm this is likely having watched my heart rate rise, and refer me on. (My life is one big referral ).
Generally, my resting heart rate is around 60 bpm and regularly falls to 54/55 bpm which is reasonably low but doesn’t cause me any ill effects. Until it starts racing. Which it started doing tonight.
So assuming a more normal starting rate of 60 bpm, I grabbed my phone and decided to watch my body go crackers out of morbid fascination. A bit like poking a bruise, or a wasps nest…
Initially, again assuming a resting rate of 60 bpm a rate of 90 bpm just lying in the bath was not anything unusual. But, seeing as my boob was doing a little Tachycardia dance, I figured I’d keep an eye on it and told myself that if I went tunnel vision or it hit 120 bpm, I’d hit the panic button that sends a help me text to Mr Geek.
I was feeling quite dizzy, but I wanted to wait it out a bit longer before disturbing Mr Geek.
Still laying down, it crept up. Some people with POTS will currently be scoffing at my measly 107bpm when they easily reach 140. However, it’s not a competition and heart stuff makes different people feel odd at different levels. Anything above 110 makes me nauseous and dizzy.
Talking of which. Now was a good time to ask Mr Geek for some help. I cooled the water down and sat in my tepid water whilst he shaved my legs & washed my hair for me. As he helped me out of the bath my right knee made an appalling noise and I replaced my patella with an equally revolting snap sitting on the loo seat whilst Mr Geek made gagging noises in the corner. (Welcome to hormonal wobbly week!)
Eventually, I just laid down on the bed and now laying down watched my heart rate slide back down. Just to make sure it would go down and any measurements weren’t affected by breakthrough drugs.
It’s weird when it does that. It’s not particularly dangerous (aside from fainting in the bath), but it leaves my chest achey and where I thought I was exhausted before, I can now barely type on my phone (I’ve dropped off three times writing this & it’s taken an hour!).
It’ll be interesting to see what the autonomic specialist says, especially about my inability to stay warm. Until then, more sleep, less heat & continued fascination about my weird body. 🙂