I’ve noticed that there a number of apps out there for people with disabilities, but the only ones that are built towards a specific condition are never quite right for people with EDS.
So, as something to keep my toe in the water, and tbh something to create a foundation for a backup for long term employment, I thought I’d do it. The question is this:
What would your ideal Ehlers Danlos App allow you to do / record / monitor?
Answers on a postcard. (Or more realistically, in the comments?)
Initial thoughts – photo based Beighton test?
Doctor appointment printable (you enter notes & images and it creates an easy to read list of concerns for your Dr with sections to record their answers because, well, brain fog.)
Don’t touch me button – if you need help, a button press will speak for you and explain your diagnoses and how to help you best.